Edited by Bernadette Thomas and Cindy Dowling
Chapter introductions by Neil Nicoll
(2004) Finch Publishing Pty Limited
I am re reading Lessons From My Child and enjoying it so much I thought I'd best post about it in case some of you have not heard of it - it is a great collection of stories by parents of kids with 'special needs'. There are a wonderful range of stories and many that I really like reading but today the prize goes to Rick Hodges for his contribution "Dealing with the tragedy of HB syndrome" - essential reading for those of us who have paled with terror whilst reading the DS medical hitlist - it is a lovely yet somewhat gentle parody of the 'typical' population. I will quote the last two paragraphs but the whole thing is worth reading:
"If your child has human being syndrome, don't despair. There are many other parents with children who have the same condition, and they can help. Seek their advice or join a support group. With hard work, patience, and help from family and friends, your child can grow up to lead a reasonably happy, normal life.
I believe the parents of children with disabilities should extend our hands to help parents of children stricken with HBS. And when you see them on the street, try not to stare. Just treat them like everyone else."