Then I heard that Stella Young a disability advocate was going to be on an Aust current affairs show called Q&A. Eagerly I looked at the site wanting to see what questions she'd get. There were heaps on the proposed carbon tax... but only a couple on the proposed NDIS (National Disability Scheme). Now I love Q&A and I know that the carbon tax is important but this is a weekly show and a lot of it's time seems to end up being taken with a merrygoround of factional political parties arguing about climate change. I felt that if I wanted to watch a fantastic episode where Stella could strut her stuff - maybe I'd have to participate too. There is noone to hide behind. Noone I could jostle in front... but what to ask... there are so many things about disability that I want to lobby about. And so I finally put fingers to keyboard and drafted a question - based around the issue of how social structures and some professionals seem to baulk at the idea that they should be the ones to change - rather Hannah should be made to 'fit in'. It is a topic near to my heart.
Still I nearly had a heart attack when I got an email today saying my q had been shortlisted - and could I send in a video of it if possible? Well then I really nearly did have a heart attack. I quickly replied, with my heart pounding, that I was too chicken to be videoed but I hoped that they might still be able to use my question or one similar.... Then I rang my husband. He was very encouraging. I bit the bullet and videoed my question. With my heart absolutely clenched tight I submitted it. Then I got 2 more calls this afternoon to clarify who I was and where I live and if I belonged to any political parties etc... my video is on the short list for tonight. National tv. My heart is in my mouth... who would have thought it? If I had have had 2 regular kids I might have been quietly eating my way through a bowl of icecream and milo and listening to some other special needs mama put her heart on her sleeve - yet again - for the wondrous joy that her child brings her. Spreading the word, raising issues, making sure she is seen and HEARD.
Wish me luck. I truly am terrified. What a ride!
Ferragosto time in 'little Italy' so we all walked around to the main drag to see what was happening.
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captivated
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These little guys had Hannah enthralled for ages. They splashed through the water - a couple tried to swim in the little bowl and in between they'd go and nibble at the bunnies at the back of the enclosure. Very sweet - I almost wished we had a pond in our back yard!
My gorgeous boy
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I bought a dolly's tutu - which Hannah was keen to put on one of her many dolls - and then she gave her a dancing class.
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Kit took to writing songs for some reason recently. here is one of them - the first I think? Anyway - he recorded about 8 tracks on the Mac using some software of his father's - and now the bug has passed cos he and Hannah have been too busy acting out the parts of Charlie and Lola as they watch them on dvd.
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The cooking fascination continues however - Phil and he blanched tomatoes for a sauce to serve with scallops for dinner last night and he made us a jelly with praline crumble for dessert.
2 comments:
That's awesome Shelley, hope your question is heard. I'm sure you did great and I am proud of YOU!
Love the photos, the playing and the singing/acting/cooking stories. All too cute!
Hi
My name is Jenna and I came across your site. Hannah is an amazing, beautiful, inspirational hero. I was born with a rare life threatening disease, and developmental delays. I love it when people sign my guestbook. www.miraclechamp.webs.com
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